“Someday” is Now

I’ve been blogging about my heart history for the last few posts. You can read about when I was born, my open heart surgery at age 2, and how having a Congenital Heart Defect (CHD) has affected my growing up years.

I’ve posted in the past about how pregnancy could effect my heart. It turns out, after I was able to carry two wonderful precious babies, my heart has in fact has some negative change.

First – because I can – here are some of my favorite pictures of my boys. I love them to bits!

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The day my youngest (E) was born.

 

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Are they not precious?! Both of these photos of the boys are from when we were still in the hospital. (Z on the left, E on the right)

 

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Twins, two years apart. Z on the left – 5 days old. E on the right – 9 days old.

 

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Love, love, love this!

 

Cankle to Ankle

These two pictures show just how dramatic the swelling in my leg was after my second child. Later, I was told that this is considered “symptomatic heart failure.” Which makes sense I guess, when you only lose .8 pounds after having a 7+ lb baby … something must be amiss.

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From September 9th – it took this long for my leg to go back to normal.

All of this to say – yes – pregnancy had an impact on my heart. HOWEVER — and this is important — This is NOT the reason for what I’m about to say. It had an impact of timing, but it’s not the reason.

So on to the news:

“Someday” is Now.

Meaning: I’m getting a heart valve!

We met with the surgeon this week and I am currently scheduled for a Valve Implantation on May 17th. May 25th  (updated to reflect new surgery date)

[It’s not a valve replacement or repair, because I don’t have anything to replace or repair. 🙂 ]

We were able to ask a ton of questions and are feeling confident that this is a good decision and the timing is right. It is considered “non-emergency”.  That’s the entire reason my doctors have kept such a close eye on me all of my life – to figure out exactly when “now” should be. While not an emergency, it is necessary because at this stage, they expect my heart to return to “normal” size since the pumping function has not been compromised (yet).

Mostly, we are wanting everyone to know so that you can be praying.

Prayer requests:

*Peace of mind for both JJ and I (I’m feeling ok about actual surgery – being put out will be better than the c-sections. Recovery – not so much. I’m dreading that and looking forward to late summer when, hopefully, I will begin discover energy I didn’t even know was possible.)

*Clarity and discernment on when and how we explain to Z what’s going on. Thankfully, due to E arriving via c-section, he already knows that Hospitals & Doctors “Help people”

*Work for JJ now, so he will be able to take some time once it’s surgery and recovery time

*A good plane ticket price for my mom as she flying here for the surgery and some of my immediate recovery time

*That Insurance will cover everything. We expect it to – but – you never know.

Praises

*Great doctors that are experts in their field

*We finished our emergency fund – a few weeks before we learned this was what our spring contained

 

I’ll be continuing to do some blog posts regarding my heart and up coming surgery. I’ll answer some frequently asked questions and such. Also, when May 25th arrives – this blog (not facebook or twitter) will be the best place for updates.

Thanks for stopping by. I know I have friends and family all over the US and Canada, the world really. Since I already had an established blog – we thought this would be the best way to let every one know what’s going on.

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2 Comments

Filed under baby, cardiology, work

2 responses to ““Someday” is Now

  1. Tara

    We will be praying for you and your family, and all of the specific requests. God is in control! Sending big hugs.

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