A few years after my open heart surgery, my family moved from Chicagoland to the Pacific Northwest. I was 6 and a half when we moved.
As I mentioned in my last post, there is no cure for CHD. I spent many days going to cardiology appointments. For a while, it was once a year, then twice a year. There was a period of time I got to go only once every two years, which was short lived as I hit puberty and my cardiologist knew I needed to be monitored more often.
My “normal” has always been a little off from actual “normal.” For instance, I’ve always had restrictions on what sports I may participate in. When I was in 5th grade, I participated in track, only to be chastised by my cardiologist. “Don’t you know you aren’t supposed to run track?!? Don’t you hear the new stories of kids dropping dead on the running track!?!” Oops! (If you are wondering, I got the green light to play soft ball, and be in a bowling league.)
Because of these physical limitations, I was not allowed to participate in P.E.. That awkward, learn to shower at school with classmates situation – I never lived it. It also meant I got to take a ton of extra electives in High School. (Lots of Art!)
Medically speaking, everything is always more complicated for me. In high school, when I needed to have my wisdom teeth removed, no one would touch me because I was such a risk. I had to have them out up at Seattle Children’s Hospital.
When I had a very unusual case of gall stones the summer before my senior year of college, I had to have extra tests just to make sure it was not being caused by my heart. Apparently my blood was breaking down faster than it was supposed to. This resulted in hard conversations about “What happens if they say I’m dying?” Thankfully, that was not the case and I was able to return to college and complete my degree.
As most of you likely know, more recently, my heart health made for some high risk pregnancies. (You can read more about that here.)
I’ve been blessed and am very fortunate to live what I call “bonus time.” If you think about it, we are all in bonus time – I just happen to have tangible proof.
Thank you for reading my story. Come back soon to find out “What’s Next.”