Tag Archives: CDH

Thanks for stopping by

If you are new to my blog – more heart surgery updates will be posted tomorrow.
If you want to read (and see) some of my story, and why I’m having heart surgery…

Start here: It All Started At the Beginning

(January 25th, 2016’s post)

As always, Thanks for the continued prayers!

No matter what happens tomorrow, in all things, God is good!

 

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UPDATE — POSTPONED

Quick update. Surgery has been postponed!

***New Date***

Friday, May 27th

An infant needed surgery on Tuesday and they didn’t want the team doing back to back days, so Friday was the next opening schedule for the OR and the team.

Thanks for your continued prayers.

I am disappointed. (We had the boys all packed, ready to leave this afternoon and drop them off and I just want to get the surgery over with.)

But when they said “Could you?” I thought “Yes! Someone probably was bumped for me when I was an infant.”

Then I talked to my mom and she told me someone WAS bummed for me when I was an infant. An old man needing gall bladder surgery. LOL!

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One week out

Some updates on past posts and prayer requests:

*The van is fixed. It turned out everything was under warranty.  The ‘faulty part’ that landed it in the shop to begin with was probably ‘faulty’ because our van required something a little more hefty. So it’s fixed and running well – and didn’t cost us other than time.

*JJ’s work has gone well. It’s been a little slow the last week or so, but God continues to provide us what we need financially and it’s been nice to have him home a little more. We were able to go to the zoo last week and even today, we had a nice afternoon of running errands and then hanging out as just our little family of four. It’s nice to be able to make a few family memories before we enter a hard season.

*E is still waking up somewhere between 4-6 am to eat. I’m bummed he’s not sleeping through the night but he is pulling up, saying da-da-da-da, and crawling a bunch.  My guess is these developmental milestones have ratcheted up his appetite.

*My mom comes in at the end of the week – looking forward to seeing her!

*We seem to all have allergies (or head colds) but so far surgery is still on schedule and I’ve been improving.

*My dad flew out yesterday after visiting for a week. It was great to have him in town.  –> Prayer Request … My dad isn’t able to be here for the surgery because he’s helping one of my brothers’ family.  My nephew, Jack, has some medical tests in the midwest next week so my dad is going to be helping drive across country. Please pray for that trip. Safe travels and successful medical tests and procedures. We are hopeful Jack (born at 27 weeks, now almost 4 yrs old) will have some good news about long term status of his esophagus (he currently has a trach). The little guy’s biggest procedure day is also May 25th, same day as my surgery.

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May is here!

Surgery month has arrived… which means tomorrow is the only day I have nothing on my calendar. Seriously.

We have some very dear friends coming to town on Wednesday and from the moment I pick them up from the airport, it’s a whirlwind. I’m pretty sure I will blink and it will be surgery time.

Another great thing happening this month before surgery is that my dad is flying in for a visit. He is unable to be here for the actual surgery, so he’s visiting a week or so before hand. I know Z is super excited to see Grandpa.

Last month we crossed a bunch of items off the to do list (bunk beds purchased and assembled, family pictures planned and taken, just to mention a few), so now I’ve started my pre-surgery planning, which mostly consists of starting a packing list for the boys.

I had a hilarious conversation with Z this morning when I said “Hey! It’s May! Do you know what that means?”

He replied “Hospital.  [mumble…toddler words…something I couldn’t understand].”  After several minutes I finally figured out he was saying “new scar.” Which is true.

So that is where we are at, figuring out all the logistics and details of what actually needs to be done when surgery time arrives.

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